- Dec 6, 2005
- 840
- 3
- 18
Thanks Jurched...
i have contracted an extremely rare virus that has affected my skin and especially my legs. dermatologists at Johns Hopkins Hospital (thats also where i work) tested my blood several times over and did two biopsies (think a cookie cutter chunk of skin tissue way deep into your leg the size of a no.2 pencil eraser)
to figure out i had what's called HSP.
you can google it pretty quickly. Problem is i can't work becuase of the time i spend in patient areas and its not contagious but my legs broke out bad in rash and they fear i could contract something else as well too easily.
im left sleeping very lightly and trying to balance being on my feet versus sitting down or laying down a lot. my right leg is so swolled it like bees stung me so many time my ankle is about twice its normal size and the red blotches to boot.
im the only person in our state to have this over the age of 20 in like the past 5 years. They are putting my photos of the scars and tissues into the medical journals for future reference.
i am getting around though...though long walks arent happening i will opt to grab the nearest wheelchair to get around. i don't see a problem with that i simply can't walk across 3 acres of building to shop.
and im wheeling the damn thing myself so im still getting exercise, just upper versus lower body. gimme a basket to cart the goods in and im good to go.
but this has been the most painful thing ive been through since i ruptured a disc in my back 10 years ago. i've had my gall bladder out, a set of badly injured veins stripped, two hernia operations, and my chin sewed back together.
so hopefully i'll get to interact and invoke my .02 a little more than usual over the coming weeks trying to figure out how to contribute to help solve the mess of a world we are in.

i have contracted an extremely rare virus that has affected my skin and especially my legs. dermatologists at Johns Hopkins Hospital (thats also where i work) tested my blood several times over and did two biopsies (think a cookie cutter chunk of skin tissue way deep into your leg the size of a no.2 pencil eraser)
to figure out i had what's called HSP.
you can google it pretty quickly. Problem is i can't work becuase of the time i spend in patient areas and its not contagious but my legs broke out bad in rash and they fear i could contract something else as well too easily.
im left sleeping very lightly and trying to balance being on my feet versus sitting down or laying down a lot. my right leg is so swolled it like bees stung me so many time my ankle is about twice its normal size and the red blotches to boot.
im the only person in our state to have this over the age of 20 in like the past 5 years. They are putting my photos of the scars and tissues into the medical journals for future reference.
i am getting around though...though long walks arent happening i will opt to grab the nearest wheelchair to get around. i don't see a problem with that i simply can't walk across 3 acres of building to shop.
and im wheeling the damn thing myself so im still getting exercise, just upper versus lower body. gimme a basket to cart the goods in and im good to go.
but this has been the most painful thing ive been through since i ruptured a disc in my back 10 years ago. i've had my gall bladder out, a set of badly injured veins stripped, two hernia operations, and my chin sewed back together.
so hopefully i'll get to interact and invoke my .02 a little more than usual over the coming weeks trying to figure out how to contribute to help solve the mess of a world we are in.