Time for a new update.... There is good news and bad news!
First the good news. I'm starting to gain back a little weight. I'm up to about 141 now and gaining muscle back in my leg. My knee is pretty well back to normal. I have about 95% of total mobility, and I'm playing quite well. Other than knocking off some additional rust, I'm pretty well back to normal. I'm also gaining in energy, though if I over do it....I feel it! I'm also starting to feel pretty normal for the most part. I still have pain from my abdominal surgery but as of a few weeks ago, I am totally off pain meds. That was a battle all on it's own.
The bad news is that after having a very specialized test done to guage the effectiveness of my immune system against the crohns disease. The test showed that based on current levels I have a 75% chance of the crohns coming back with a vengence against my little 8 inch colon within the next 5 years. When the test was ameritized out to 30 years the percentage jumped up to 96%. What that tells us is that (A) the disease was originally under estimated, and (B) the oral meds I'm taking are not effective. What now has to happen is more aggressive treatment. The options are, from I understand daily shots, and IV treatments at the hospital. The shots are similar to someone who takes insulin. They self administer and is mostly just an annoyance. The IV treatments are similar to Chemotherapy. I would need to go to the hospital regularly for the course of the doses, which would be a few hours a day administering several doses over a span of a few weeks. Then I would have a break for a little while before I go back and start over.
Even after we get started on all of these agressive preventitive measures, I can only hope to get my percentage down to 50%. If I do get in a situation where I have to have surgery again on my intestines, the likely hood is that I would come out with an ostomy bag to shit in. I meet with the Dr. on wednesday to talk about my treatment options. Hopefully I will know then a little better the side effects and complications of the treatment.
I'll keep you posted!
-Bizzaro